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Undiagnosed Mystery Diseases

You are here: Home / Archive / Feature Stories / Undiagnosed Mystery Diseases
Published: June 6, 2021 by RHJ Producer

Hundreds of patients nationally have diseases that have confounded doctors and yielded no diagnosis and no reliable treatment. Today the Undiagnosed Diseases Network, founded and funded by the NIH, helps these patients, but its funding is uncertain beyond 2022. Patients and a physician leader of the UDN discuss the lonely plight of these patients and the hope UDN provides.


Guest Information:

  • Meghan Halley, mother of child with unidentified illness
  • Troy Evans, patient with unidentified illness
  • Kimberly LeBlanc, genetic counselor and Associate Director of Research Operations at the Undiagnosed Diseases Network (UDN) Coordinating Center, Harvard Medical School

Links for more info:

  • Undiagnosed Disease Network
  • UDN Peer
Program #: 21-23Segment Type: Feature StoriesTopics: Consumerism| Consumerism and Consumer Safety/Protection| Diagnoses| DNA and Genetics| Ethics| Federal and State Government| Federal Government and Regulation| Government and Legislation| Health Care| Medical Research| Misdiagnoses| Philosophy and Ethics| Public Health| Public Health and Public Safety| Public Policy and Regulation| Research and Clinical Trials| Undiagnosed and Mystery Illness| Vulnerable PopulationsGuests: Kimberly LeBlanc| Meghan Halley| Troy EvansInstitutions & Organizations: Harvard Medical School| Harvard University| National Institutes of Health (NIH)| Undiagnosed Diseases Networktagged with: Jason Dickey| Reed Pence
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About RHJ Producer

Since 1992, Radio Health Journal has been bringing listeners useful, verifiable information they can trust and rely on in the fields of medicine, science & technology, research, and the intersection of health & public policy. Both Radio Health Journal and sister show Viewpoints Radio are AURN productions.

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