Born with NF1-PN, a rare genetic disorder, Austin Fields spent his childhood learning how to live in a body riddled with benign tumors. Though removal surgery is the main treatment for this painful condition, a new medication has recently been approved for adults with NF1-PN. Our experts explain what it’s like to live with this condition and how this novel drug is enhancing patients’ quality of life.
Guest Information:
- Dr. Angela Hirbe, Associate Professor of Medicine & Director of the Adult Neurofibromatosis Clinical Program, Washington University School of Medicine
- Austin Fields, NF1-PN Patient
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